Awareness

Is Mikovits in or out?

by Johan December 18, 2011

Is Mikovits in or out (of work or jail)? What does this have to do with the Lipkin XMVR-study? Why do some patients keep on referring to HGRV or High Gastric Residual Volume?

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Organization against Quackery on fashionable illnesses like CFS, ME and FM

by Johan December 5, 2011

CFS, ME and FM are fashionable illnesses and it is best to ignore them, according to Cees Renckens of the Dutch organization against quackery. I don’t agree.

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Vereniging tegen Kwakzalverij over modeziekten als CVS, ME en FM

by Johan December 5, 2011

Volgens Cees Renckens van de Vereniging tegen Kwakzalverij zijn CVS, ME en FM modeziekten en kunnen die best genegeerd worden. Ik ga daar niet mee akkoord.

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Call to action for all Belgian ME/CFS patients – October 2011

by Johan October 3, 2011

Now the new criteria for ME are published and the Belgian policy towards CFS is about change, but not necessarily to our benefit, it is time to provide your doctor with some good information.

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Oproep aan alle Belgische ME/CVS patienten – Oktober 2011

by Johan October 3, 2011

Nu de nieuwe criteria voor ME gepubliceerd zijn en het beleid in Belgie t.o.v. CVS gaat veranderen, maar niet noodzakelijk ten goede, is het tijd om je arts van goede informatie te voorzien.

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The ICC for ME are finally published. What’s next?

by Johan September 29, 2011

The paper “Myalgic encephalomyelitis: International Consensus Criteria” is finally published in the Journal of Internal Medicine. But where do we go from here?

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The Danger of a Single Story by Chimamanda Adichie

by Johan September 6, 2011

A TED Talk in which an African writer shows that she has more common sense and a better grasp at dealing with information than most Western journalists – probably even better than most people. A response to the recent flux of “researchers receive death threats” articles.

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Deer therapy for CFS. You’ve got to be kidding me!

by Johan September 5, 2011

A successful action by ME/CFS patients was ignored by the media, while a questionable organization like the CFS Society got the opportunity to promote their deer therapy.

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Are British Libel Laws Used To Silence The ME/CFS Debate In Belgium?

by Johan August 12, 2011

In a previous article I explored what could be the cause of the lack of media-attention for a successful action by ME/CFS patients. Meanwhile some new data has surfaced.

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Belgian ME/CFS Protest of March 14, 2011

by Johan August 12, 2011

On March 14, 2011 a national ME/CFS protest took place in Brussels, the capital of Belgium. What intrigues me and this is also the topic of this article, is why this successful action hardly got any press coverage at all.

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