Posts tagged as:

biomedical

Prof. Dr. De Meirleir Finds XMRV In Europe

by Johan September 3, 2010

Prof. dr. De Meirleir has found XMRV in ME/CFS patients across Europe, thus confirming recent American studies. He also found an immunological signature similar to that of symptomatic HIV in ME/CFS patients. His new findings will be presented at a workshop at the NIH in Washington next week.

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A Rose By Any Other Name Would Still Smell As Sweet

by Johan August 8, 2010

Recently the whole name change issue for ME/CFS came up again, which it does periodically. This is my view on the subject, presented as some loosely connected ramblings. I really don’t want to spend time, money or energy on this subject; that is no more than for writing this article.

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Looking For Research On GET And CBT

by Johan July 31, 2010

I need your help finding research on graded exercise therapy (GET) and cognitive behavioral therapy (CBT). A Google search on “GET graded exercise therapy” returns 129,000 results. This should provide me with all the information I need. Right? Actually, this is not the case. There is an astonishing lack of good and detailed information out there.

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Prof. Dr. Kenny De Meirleir And Himmunitas

by Johan June 17, 2010

During the past couple of months several people have asked me for the contact details for Prof. Dr. Kenny De Meirleir and his Himmunitas Foundation as they do not have a website yet.

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What Is Wrong With ME/CFS Research?

by Johan June 13, 2010

Why should I care about ME/CFS research? Because I am a ME/CFS patient and that makes me an interested party. The quality of ME/CFS research will not only determine my future health, but also the kind of life I can have. After my relapse in 2008 and struggling without progress for more than a year when none of the techniques, diet and supplements that helped me before worked, I decided to catch-up on ME/CFS research during the Summer of 2009. What I saw didn’t make me happy.

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XMRV And Aging Men, Waiting Room Observations, And Spin Doctors

by Johan March 5, 2010

I normally limit my articles to one topic, but this article contains 3 short stories that otherwise wouldn’t have made it to my blog: “Spin Doctors”, “Waiting Room Observations”, and “XMRV and Aging Men”.

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To Get Tested For XMRV Or Not. That’s The Question.

by Johan March 2, 2010

In one of my previous post I described my first visit to the Himmunitas Foundation and Prof. Dr. De Meirleir. I have the impression that for the first time I am going to get thoroughly tested, but it left me with one question, “Should I take the expensive XMRV test or not?” People replied with comments on my blog, in forums, in emails, and with a blog post. I have made a decision.

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First Visit to Himmunitas and Prof. Dr. De Meirleir

by Johan February 7, 2010

Almost exactly 8 years after my diagnosis with CFS in an official clinic, the CFS Reference Center in Gent, with an exclusive psychosocial approach to ME/CFS, I visited a biomedical clinic: the Himmunitas Foundation.

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Response to “Fighting Fatigue” on MindHacks.com

by Johan January 20, 2010

This article is a response to the article “Fighting Fatigue”, published on January 6, 2010, by Vaughn on MindHacks.com. I have seen it described on Twitter as well-balanced, thoughtful approach, first-base, …, but I don’t agree; I find it biased.

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