Himmunitas

To Get Tested For XMRV Or Not. Oh No, Not Again!

by Johan June 9, 2011

The third article in the series “Should you get tested for XMRV or not?” with the results of my tests. As with several of my more recent articles, better late than never.

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Goals For 2010 – Final

by Johan December 27, 2010

Setting goals can be tricky when you have ME/CFS.

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To Get Tested For XMRV-MLV Or Not. That’s Still The Question.

by Johan September 26, 2010

Almost 7 months ago I had to make a decision: to get tested for XMRV (Xenotropic murine leukemia virus-related virus) or not. As you might have read on my blog in an earlier post, I decided against it. This week I had to make a new decision, to get tested for XMRV-MLV or not. Did what happen in the past 7 months was enough to make me change my mind? The negative studies, the positive studies, the XMRV workshop, the hype, the heated debate, …

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Prof. Dr. De Meirleir Finds XMRV In Europe

by Johan September 3, 2010

Prof. dr. De Meirleir has found XMRV in ME/CFS patients across Europe, thus confirming recent American studies. He also found an immunological signature similar to that of symptomatic HIV in ME/CFS patients. His new findings will be presented at a workshop at the NIH in Washington next week.

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A Rose By Any Other Name Would Still Smell As Sweet

by Johan August 8, 2010

Recently the whole name change issue for ME/CFS came up again, which it does periodically. This is my view on the subject, presented as some loosely connected ramblings. I really don’t want to spend time, money or energy on this subject; that is no more than for writing this article.

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Goals For 2010 – Halfway

by Johan July 7, 2010

Halfway through the year it is time for the next update on my goals for 2010. How am I doing? Am I on track or not?
When I made this list with goals for 2010, I assumed my condition would remain stable or improve. After all, I lost my job so now I could focus completely on my health, finding a sustainable pace. Right? I was a man with a plan, but isn’t there a saying “Men plan, God laughs”?

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Prof. Dr. Kenny De Meirleir And Himmunitas

by Johan June 17, 2010

During the past couple of months several people have asked me for the contact details for Prof. Dr. Kenny De Meirleir and his Himmunitas Foundation as they do not have a website yet.

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Waiting Room Observations In A ME/CFS Clinic

by Johan May 9, 2010

What can you learn from observing patients at a doctor’s, general practitioner’s, hospital’s, or a biomedical ME/CFS clinic’s waiting room?

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First Visit to Himmunitas and Prof. Dr. De Meirleir

by Johan February 7, 2010

Almost exactly 8 years after my diagnosis with CFS in an official clinic, the CFS Reference Center in Gent, with an exclusive psychosocial approach to ME/CFS, I visited a biomedical clinic: the Himmunitas Foundation.

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