Science

Judy Mikovits Has A Drawer Full Of Papers

by Johan November 14, 2010

Dr. Judy Mikovits from WPI claims she has a drawer full of scientific publications, but THEY don’t want to publish them. Who are they? The men in black or the men in white coats?

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To Get Tested For XMRV-MLV Or Not. That’s Still The Question.

by Johan September 26, 2010

Almost 7 months ago I had to make a decision: to get tested for XMRV (Xenotropic murine leukemia virus-related virus) or not. As you might have read on my blog in an earlier post, I decided against it. This week I had to make a new decision, to get tested for XMRV-MLV or not. Did what happen in the past 7 months was enough to make me change my mind? The negative studies, the positive studies, the XMRV workshop, the hype, the heated debate, …

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Prof. Dr. De Meirleir Finds XMRV In Europe

by Johan September 3, 2010

Prof. dr. De Meirleir has found XMRV in ME/CFS patients across Europe, thus confirming recent American studies. He also found an immunological signature similar to that of symptomatic HIV in ME/CFS patients. His new findings will be presented at a workshop at the NIH in Washington next week.

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What Does The FDA/NIH/Harvard Paper Mean?

by Johan August 24, 2010

Yesterday evening the long awaited and heavily anticipated study by a team the from National Institutes of Health (NIH), the Food and Drug Administration (FDA) and Harvard University “Detection of MLV-related virus gene sequences in blood of patients with chronic fatigue syndrome and healthy blood donors” finally appeared on the website of PNAS – Proceedings [...]

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On XMRV, HGRV, XAND, and HGRAD

by Johan August 20, 2010

Yesterday ProHealth published the news about a possible name change for XMRV, the retrovirus linked to ME/CFS and prostate cancer. The new name would be Human Gamma Retro Virus (HGRV) and the associated illness Human Gamma Retrovirus Associated Disease (HGRAD). I do not rule out this is just a teaser to see how the patients respond before the name change is officially announced. Well, glad to be of service; this is my response.

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A Rose By Any Other Name Would Still Smell As Sweet

by Johan August 8, 2010

Recently the whole name change issue for ME/CFS came up again, which it does periodically. This is my view on the subject, presented as some loosely connected ramblings. I really don’t want to spend time, money or energy on this subject; that is no more than for writing this article.

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Looking For Research On GET And CBT

by Johan July 31, 2010

I need your help finding research on graded exercise therapy (GET) and cognitive behavioral therapy (CBT). A Google search on “GET graded exercise therapy” returns 129,000 results. This should provide me with all the information I need. Right? Actually, this is not the case. There is an astonishing lack of good and detailed information out there.

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Waiting Room Observations In A ME/CFS Clinic

by Johan May 9, 2010

What can you learn from observing patients at a doctor’s, general practitioner’s, hospital’s, or a biomedical ME/CFS clinic’s waiting room?

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XMRV And Aging Men, Waiting Room Observations, And Spin Doctors

by Johan March 5, 2010

I normally limit my articles to one topic, but this article contains 3 short stories that otherwise wouldn’t have made it to my blog: “Spin Doctors”, “Waiting Room Observations”, and “XMRV and Aging Men”.

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To Get Tested For XMRV Or Not. That’s The Question.

by Johan March 2, 2010

In one of my previous post I described my first visit to the Himmunitas Foundation and Prof. Dr. De Meirleir. I have the impression that for the first time I am going to get thoroughly tested, but it left me with one question, “Should I take the expensive XMRV test or not?” People replied with comments on my blog, in forums, in emails, and with a blog post. I have made a decision.

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